Recently we wrote on this blog about Ethan needing a break from PMH and therapy – as much as possible! Well we are now at the end of the break and looking forward to resuming therapy. He has had so much fun the last few weeks and is definitely the better for it.
Of course, Ethan being Ethan he didn’t avoid PMH altogether during his break. Apart from his MRI, he also managed to vomit up the end of his NG tube early one morning (so he had one end hanging out of his mouth, the other still down his nose – a little scary until we pulled it out) and he also had a check up this week. We had the check up because he’s been vomiting a bit lately in the mornings and that is always a worry for a child with a shunt, because one of the symptoms of a shunt not working properly is vomiting upon waking (due to increased pressure on the brain – hydrocephalus).
Thankfully Ethan’s vomiting seems to be more likely due to problems with his tummy tolerating his feeds, and the doctors were confident there is nothing neurological going on at this stage. Still, his next MRI has been moved forward from January to December, just to be on the safe side. And we know to keep an eye on him and go straight in if we have any concerns.
Ethan’s wonderful PMH speech therapist and occupational therapist came to our place yesterday for a home visit – or as I called it (in my worst David Attenborough voice) “to observe Ethan in his natural habitat”. It was lovely to see them both and discuss Ethan’s progress. Our next steps include (and there are many!) modifying Ethan’s feeding schedule to support the reintroduction of solids, doing more intensive speech therapy on his communication skills and getting him prepared for pre-kindy next year. So, like always, there is always something to work on and to help Ethan with.
We would love for Ethan to learn to eat and drink again so he doesn’t need his NG tube – but realistically that might be more of a long term goal than a short term one. Still, tolddlers are notorious for surprising everyone and Ethan is no different!