Special people in Super Ethan’s journey

Yesterday Ethan and I were lucky enough to catch up with one of the special people who has been a part of Ethan’s cancer journey to date. Dr Aggie Judkins and her gorgeous son Noah came to visit!

Dr Aggie is a Consultant Paediatrician at PMH. Dr Aggie and Registrar Dr Emma Turner are the doctors who found Ethan’s tumour. They are very special people to us because they were the first doctors at PMH who treated Ethan and without their expertise, kindness and dedication we might not have found his tumour when we did. They always believed us when we said something was wrong with Ethan.

Dr Aggie and Dr Emma spent 4 days with Ethan in hospital, doing test after test to try and figure out what was wrong (the tumour was found on day 4). It was a very nervous process for me, I didn’t know what to expect, whether to feel relieved or worried when tests kept coming back clear one after the other!

But Dr Emma gave me some advice that I’ve never forgotten – she said (words to the effect) that “the most common illnesses occur most commonly”…basically that as a doctor, you test for the most common, likely illness based on the symptoms first, and then if that comes back clear, you move onto the next common (or most likely). Seems basic, but it explains why every kid that has a headache in emergency at PMH doesn’t end up in an MRI machine…the likelihood of it being a brain tumour is actually tiny. And the same logic still applies to Ethan, even now – a runny nose is still more likely to be a runny nose rather than anything more serious!

Dr Emma had the very difficult task of ringing me at home just after the tumour had been spotted on the MRI (in fact Ethan was still under the anaesthetic when she called me). Shannon was at PMH with Ethan as I had a rotten cold and was stuck at home so I didn’t infect the other patients. I still remember her very calmly just asking me to come in straight away so Dr Aggie could speak to me. Recently I saw Dr Emma and we spoke about that call, and I thanked her for being so calm and keeping me calm, and she said it was a really hard call for her to make.

Dr Aggie had the even more difficult task of telling Shannon and I about the tumour. Ethan had only just come out of the anaesthetic and we were waiting on the ward with him in the cot beside us. Dr Aggie sat us down, explained what had been found and asked us if we wanted to see a picture (we did). Once she finished with us, she then had to go outside and tell my parents and Shannon’s mum. I am still amazed to this day how she managed to tell us all with such compassion, and yet keep composed and stay strong and keep us in one piece. After that we met with Ethan’s neurosurgeon and within an hour or two he was having emergency surgery to relieve the pressure in his brain.

The reason I wanted to share this part of our story is because I never stopped to think about how Ethan’s diagnosis didn’t just affect us as his parents, or our families, or our friends. The doctors that have to deal with this sort of shock, pain and grief – well I think they are really special people. And we are lucky to have them to take care of our kids.

Dr Aggie also told me something very important that day – she told me that Ethan’s tumour wasn’t caused by anything that we did, or didn’t do. It was just crap. That might not seem like much – but those simple words stopped me from wasting precious energy in the coming weeks and months worrying that I did something wrong that gave him cancer. And I will be forever very grateful for that.

Update on Ethan

An update on Ethan for everyone who is interested. Sorry I haven’t been replying to individual messages. Ethan has finished his induction chemotherapy and will start radiation therapy later this month. The results of his most recent MRI scan were positive and at this stage no further operations are required. He has been well enough to receive treatment as an outpatient for a few weeks now; hopefully this can continue as he is enjoying his time at home. We are hopeful he will get strong enough to walk again soon.